Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid.

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Voices of M.E.

Voices of M.E.

Do you have Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (ME/CFS), Long COVID, or a related chronic illness? Share your story today to help raise awareness and inspire hope within the community. And don’t forget to read the many uplifting stories of people living with chronic, complex diseases around the globe. 

Christian Godbout Speaks on the History of ME/CFS
and Why We Must amplify all Voices of ME

You have undeniable power.

Share your story

John's
Long Covid Story

Meghan's
ME/CFS Story

Jody's
ME/CFS Story

Leah's
ME/CFS Story

Kim Eggers'
ME/CFS Story

April's
ME/CFS Story

Yas'
ME/CFS Story

Rea's
ME/CFS Story

Michelle's
ME/CFS Story

Jean's
ME/CFS Story

Anna's
ME/CFS Story
Other links you might be interested in:
Information for Doctors
History of ME / CFS
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(EIN# 26-4712664). All donations are tax-deductible to the full extent allowed by law.

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Phone: 650-242-8669 

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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Submit Your Story

Your story has undeniable power. By sharing your experiences, you can inspire hope for all those living with ME/CFS and related, multisystem, chronic, complex diseases (msCCD). Whether you are a patient, caregiver, advocate, or healthcare professional, we invite you to submit your story and be part of our OMF Family. Your story may be featured on our social media accounts (@openmedf), digital newsletter, and website.
(*indicates required field)
 
Ideas to start your story
  1. How long have you (or the person you are writing about) been ill? 
  2. What was life like prior to chronic illness? (You can describe your career, hobbies, passions, social life, etc.) 
  3. What does daily life look like now?
  4. What gives you the most hope on your bad days?
  5. What is one thing you wish every person would understand about chronic, complex diseases such as ME/CFS? 
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